Sickle Cell Disease is a genetically inherited blood disorder prevalent among people of African, Caribbean, Central/South American, East Indian, Middle Eastern, Mediterranean, Asian and Southeast Asian ancestry. Sickle cell trait and disease is indigenous to all these populations because of malaria. These genetic mutations developed over thousands of years as a result of the human body’s natural immune response against malaria.
The disease process results in severe anemia, oxygen deprivation, poor circulation and extreme pain. Painful episodes known as “crisis” are disabling and debilitating. Complications associated with sickle cell disease are:
- Enlargement and damage of the spleen (life threatening, especially in children).
- Dysfunction or acute failure of the liver or kidneys.
- Damage to tissue and bone due to diminished blood flow and loss of oxygen.Organs most commonly affected are the heart, lungs, brain, shoulders and hips bones as well as upper and lower extremities - resulting in the development of arm and leg ulcers.
- Stroke due to infarction of blood vessels.
Because this disease affects people of color there is less attention paid to the problem 1 in 500 African Americans have the trait and 2 million people in America suffer from it.
Treatment centers are refusing adult patients care and regulating coverage for Children.
We need your help.
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The Pain I Feel - SCTPN.org president speaks
Africa Allah
4/15/2009
Sickle Cell the forgotten disease. 100Million people world wide have a disease that affect people of color yet in the…
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4/15/2009
Sickle Cell Sufferers Face Uncommon Pain - ABC News many do not know that it can also bring about…
4/8/2009
Pump Pirates - Who Care? Free Download Free Mixtape in support of Sickle Cell Awareness. Let's get the urban…
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Who Cares?
What's in Ya EarHole
DIRadioCast parent company DistinctiveImpression MMG to head New Media ad campaign for Sickle Cell Awareness walk hosted by www.SCTPNWalk.org. The new media campaign addresses the lack of attention and knowledge with a simple phrase "Who Cares?" Independent artists Brooklyn's Icadon, Cali's Roccett, Atlanta Publicist L of StarLitPR and producer Baby Paul have joined the push to educate the masses through social network post, pictorial ads, vlogs, podcast interviews and event support. Question is do you care enough. Tell ten friends to visit www.SCTPNWalk.org you don't have to be in the city to support.
Baby Paul On DIRadiocast
DIRadioCast vol8_05
Icadon On DIRadioCast
Wed, 8 April 2009
DIradioCast vol8_04
We Care!
Triple Platinum Underground Radio , FuseBox Radio, Lush Radio Online, J. Holloway, Kevin English of Eleet Music, Unlce Murda, Kimberly Jo of the For Me Program, Cool V of Trunk Hustlers
The Truth is:
As a community service we are helping the Sickle Cell Thalassemia Patients Network - SCTPN garner support for their 11th Annual Central Park Walk on Sept. 19, 2009. We have created a Facebook group to keep people up to date with events and breaking news as well as share stories and experiences. I am requesting your support because of your affiliations and influence. We simply need more people talking about the disease, saying the catch phrase and posting the link SCTPNWalk.org In major cities treatment centers are being closed. People of color are being denied assistance, but the question is "Who Cares?"
Other Events
SCTPN's World Sickle Cell Day Festival at Dag Hammarskjold Plaza on Friday, June 19, from 10:00 AM to 6:00 PM.
