In an effort to help educate people about sickle cell disease (SCD) and beta thalassemia (Cooley's Anemia), SCTPN will share important, up to date scientific, social, economic and legislative information.
We encourage you to share your questions, comments, and information with us.
Send your emails to info@sctpn.org,
Faxes to (877) 812-4216,
or write us at
84 -East 52nd Street, Brooklyn, NY 11203-1906.
Alan Platt at Emory
www.scinfo.org/news.htm
SCDAA
http://www.sicklecelldisease.org/index.phtml
SCTPN NEEDS YOU!
The Network is looking for 7 people in the New York City area who are interested in utilizing their professional experience and personal talents to serve as a volunteers on SCTPN’s Board of Advisors.
Individuals with experience in Public Relations, Marketing, Financial Planning/Investments, Development, Fundraising, Management and Real Estate are encouraged, but all are welcome to inquire about this rewarding opportunity to help diminish the negative impact sickle cell disease and thalassemia has on the community we serve.
Click here to contact us online or call: 877-812-4216.
Thank you for your consideration.
With missed feeling and warm wishes, SCTPN says good-bye to it’s correspondence secretary Michelle Jones. This dynamic young woman is relocating to pursue other interests.
The Network is looking for another talented, person (or two) with strong administrative skills and a command of Adobe, Excel, Outlook and Access to fill this part-time volunteer position.
Duties include:
Days and hours are flexible. Serious applicants can forward their cover letter, CV or resume by email to: info@sctpn.org or fax: 877-812-4216.